Bateman Horne Center Panel Discussion of Unrest

Yesterday (February 7, 2018), the clinical core for The JAX ME/CFS CRC, Bateman Horne Center, held a screening of Unrest, followed by a panel discussion of the documentary. The panel discussion was shared via their Facebook page, and will also be posted to the BHC Youtube page. The panel, which consisted of two married couples affected …

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Time for Unrest: Why patients with [ME/CFS] are demanding justice

A new article recently posted on Independent documents ME/CFS through the lens of Jen Brea’s Unrest. The struggles that patients face and the historical significance of disbelief surrounding the disease are discussed in-depth by Nathalie Wright. “Unrest has recently been shortlisted for an Oscar. The power of documentary film is that viewers are confronted by …

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Patient Advocate Interview: Carol Isaacson Barash, Ph.D.

In our latest “People in ME/CFS Research” spotlight, I was fortunate to chat over the phone with Carol Isaacson Barash and interview her about her extensive background in genetics ethics and scientific consulting. Carol has her own consulting company, Helix Health Advisors, and is also an ME/CFS patient and has been applying her knowledge of …

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Advocate Spotlight: Charmian Proskauer

We are pleased to present Charmian Proskauer, an ME/CFS advocate and former cell biologist and website manager, in the latest “People in ME/CFS Research” spotlight. Charmian is the President of the Massachusetts CFIDS Association, and has participated in many advocacy initiatives at both the state and federal levels as part of the organization. She is also the Chair of the US …

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Patient Advocate Spotlight: Jennifer Brea

We are very excited to present our next “People in ME/CFS Research” spotlight this week, which is my interview with patient and advocate Jennifer Brea! Jen is a documentary filmmaker who directed Unrest, a film about her experience with ME/CFS, which has received  worldwide acclaim and brought much needed recognition to this disease. She also co-founded …

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The #MillionsMissing Global Petition

ME/CFS, which affects 15-30 million people around the world and leaves up to 25% of sufferers house- or bed-bound, has an incredible social cost and has received historically inadequate funding from government agencies. #MEAction currently has a global petition to call on every government in the world to formally recognize ME/CFS, and increase research funding. The …

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Scientist Spotlight: Suzanne Vernon, Ph.D.

We are excited to present our second “People in ME/CFS Research” spotlight this week, which is my interview with Dr. Suzanne Vernon. Suzanne is the Research Director of the Bateman Horne Center (BHC), which is also the clinical core for the JAX ME/CFS CRC. At BHC, she is building a research program focused on identifying biomarkers, developing diagnostic …

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ME/CFS Resources

RESEARCH and CLINICAL Resources: The Jackson Laboratory Collaborative Research Center  Researches the mechanisms of human T cell differentiation, activation and regulation in the contexts of normal immune response, diseases and aging. Dr. Unutmaz has received one of the three Center grants for the ME/CFS project.   Cornell University Collaborative Research Center Maureen R. Hanson is Liberty Hyde …

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