The Jackson Laboratory has just released a new feature article about ME/CFS on their website to increase awareness about the disease. The feature article, which highlights the recently established JAX CRC that’s being led by Derya Unutmaz, MD, delves into some of the issues that patients face in receiving diagnosis for the disease and in finding doctors who will give them proper care to manage their symptoms, and also includes details about how the microbiome and immune system are being studied by the CRC to determine the root cause of ME/CFS.
The Center for Solutions for ME/CFS at Columbia University, one of our partner CRCs funded by NIH to accomplish ME/CFS research, is designing a mobile device app called “my/MECFS.” The app, which would allow ME/CFS patients to report on their symptoms and on activities and events that might affect symptoms, is currently being designed. To aid in the design of the app to ensure that it provides meaningful information to patients, researchers, and health professionals, and is also easy to use, Columbia is seeking input from people with ME/CFS and knowledgeable health professionals in a new survey. The survey should take 10 minutes or less to complete, and will help determine what features should be a priority for the app.