The National Institute of Neurological Disorders and Stroke (NINDS) has recently created a new National Advisory Neurological Disorders and Stroke (NANDS) Council Working Group for ME/CFS Research. Implemented in the summer of 2018, the group is composed of clinicians, scientists, advocates, and individuals with ME/CFS, and has the purpose of providing scientific guidance on how best to advance research in ME/CFS at NIH. The group has been charged with assessing the current NIH ME/CFS research activities, including identifying opportunities and gaps in research, finding opportunities to train young investigators and attract new investigators to the field, and identifying effective structures for collaboration and communication between researchers, patients, advocacy organizations, and federal organizations.
The Council members include Chair Steven Roberds, Ph.D., Armin Alaedini, Ph.D., Lucinda Bateman, M.D., Jennifer Brea, Dane Cook, Ph.D., Carol Head, Anthony Komaroff, M.D., Amrit Shahzad, MBBS, MBA, and Steven Schutzer, M.D. The Working Group provides a great opportunity for scientists, clinicians, advocates, and patients to work together to guide research initiatives at NIH.
To learn more about the NANDS Council Working Group for ME/CFS Research, click here.