A feature article on ME/CFS was recently published in the current issue of American Society for Biochemistry and Molecular Biology (ASBMB) Today. The article, which is the cover story for the March 2018 issue, describes the long and complex history of misdiagnosis and lack of support that patients face when suffering from ME/CFS, and focuses on Lizzie Mooney, a 12-year old girl who has been sick for several years and is unable to attend school or even leave the house more than once a week.
The article discusses the lack of federal funding for research on ME/CFS that has been seen historically, and also highlights patient advocacy and the studies that several scientists involved in rebooting the research are doing, including the recent NIH funding for the Collaborative Research Center grants. “The NIH announcement in September of four grants totaling more than $7 million for fiscal year 2017, and continuing for the next five years, signifies a step in official [ME/CFS] recognition. The new NIH grants will support three collaborative research centers and a data-management coordinating center for [ME/CFS] research.”