On November 28, the NIH held their third public telebriefing of 2017 to share new research with the ME/CFS community. The community heard an update from Dr. Avindra Nath about the NIH Intramural Study, who said that patients are currently being recruited to the study. Dr. Derya Unutmaz also gave a background on how he became involved in studying ME/CFS and what drives his enthusiasm. Derya explained that his two major goals for the NIH CRC are to find the molecular biological correlates to link ME/CFS biology to its symptoms, and to understand the disease mechanisms.
The NIH then opened the line for Q&A, and several patients and advocates from the community called in with knowledgable and insightful questions and suggestions.
Cort Johnson, Founder of Health Rising and an ME/CFS patient himself, wrote an extensive article in response to the telebriefing, which outlines all of the new developments covered during the telebriefing and can be viewed here:
“It’s great the NIH is doing telebriefings a couple of times a year to inform the [ME/CFS] community of their progress. The calls can be more or less interesting. This one was definitely on the more interesting side…”